Grey is sooo close to coming home! We can see the finish line in the distance and each day it is getting clearer. They ( the nursing staff) say this is the hardest time because we are so close and she is doing so well that each day seems so long. We are hanging in there though and cheering her along as she conquers each day!
So, here are the details of what has been going on since her official due date. She is currently 4lbs 10 ounces- H U G E! She is back on oxygen because she was working a little harder than doctors would like and not gaining weight as steadily as when she was off. It’s just a whiff to help her out a little. This is not a big concern as she will most likely come home with some oxygen support. She is taking four bottles a day with four NG tube feedings for a total of eight feedings per day. She needs and must take eight full bottles every day before she can come home. This is what slows the process down. A friend told me “She is not a machine- she is a HUMAN- you just have to wait on her and she will come around when she is ready.” Something so simple to say but so powerful. Like everything, Grey will be ready on HER time. So, we wait…
Another issue that we haven’t shared a ton about is that Grey has not fully discovered her voice yet. You can definitely tell she is crying but nothing comes out. She does grunt and make little squeaks but anything more than that is silent. She sounds hoarse all the time. The doctors think this is probably related to her terrible acid reflux. She doesn’t spit up but the acid comes up her throat and burns her often causing her vocal chords to inflame. Tomorrow they are doing a scope to look at her vocal chords and rule out any major problems. Short notice but please pray this goes ok and that it doesn’t set her back. Preemies get thrown off with the slightest change so this might upset her a little bit.
We are always wanting to ask the question, “when do you think she will be able to come home?” That is the first thing people ask us (rightfully so) and it’s the first thing we want to ask the doctors. The frustrating answer is, “we don’t know,” but the hopeful answer is, “maybe by halloween.” Wait with us as we wait on this 4lb baby to determine when she can come home. We are more than ready, but we are patient and find peace that God’s timing is perfect and that day will be so worth the wait.