In our last post we asked you to pray for Grey’s scope, so here is a quick update. Her vocal chords were inflamed, as suspected from her continual reflux, and she was suffering from some paresis or weakness in her left vocal chord. At this point we are not completely sure what is causing this. It could simply be developmentally weak and inflamed or possible nerve damage from birth or intubation. The good news is doctors are hopeful she will grow out of this over time, if not, there are some minor procedures they can take to correct this down the road. This weakness could also be a reason for some of her difficulty in feeding, particularly thin liquids, because her vocal chords do not fully clamp together, causing her to aspirate fluid into her lungs. For this reason, Grey has been taking very thick formula from the bottle which is easier for her to control and swallow without choking.
They break the fluid thickness into three categories. Thin (breastmilk), nectar, and honey thick. Grey has been on the honey thick, which she does great with; however, it is very exhausting for her to suck this out of the bottle, making it hard to finish and continue gaining weight. Today, Grey had another swallow study where they take an x-ray of her swallowing mechanics. She did awesome! She handled the nectar thick great and choked a little on the thin liquid. The great news is this time she coughed when she aspirated; whereas, in her last study she simply clamped down, stopped breathing, and turned “gray” – needing some stimulation and a minute to come back to. This is progress and a sign of maturity. And since she handled the nectar so well, she no longer needs to take the honey thick from the bottle. Now feeding won’t be such a workout! Thank goodness!
Thank you all for your continued prayers!