Day 110: Scope and Swallow Study

In our last post we asked you to pray for Grey’s scope, so here is a quick update.  Her  vocal chords were inflamed, as suspected from her continual reflux, and she was suffering from some paresis or weakness in her left vocal chord.  At this point we are not completely sure what is causing this.  It could simply be developmentally weak and inflamed or possible nerve damage from birth or intubation.  The good news is doctors are hopeful she will grow out of this over time, if not, there are some minor procedures they can take to correct this down the road.  This weakness could also be a reason for some of her difficulty in feeding, particularly thin liquids, because her vocal chords do not fully clamp together, causing her to aspirate fluid into her lungs.  For this reason, Grey has been taking very thick formula from the bottle which is easier for her to control and swallow without choking. 

They break the fluid thickness into three categories.  Thin (breastmilk), nectar, and honey thick.  Grey has been on the honey thick, which she does great with; however, it is very exhausting for her to suck this out of the bottle, making it hard to finish and continue gaining weight.  Today, Grey had another swallow study where they take an x-ray of her swallowing mechanics.  She did awesome!  She handled the nectar thick great and choked a little on the thin liquid.  The great news is this time she coughed when she aspirated; whereas, in her last study she simply clamped down, stopped breathing, and turned “gray” – needing some stimulation and a minute to come back to.  This is progress and a sign of maturity.  And since she handled the nectar so well, she no longer needs to take the honey thick from the bottle.  Now feeding won’t be such a workout!  Thank goodness!

Thank you all for your continued prayers!

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13 thoughts on “Day 110: Scope and Swallow Study

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  4. Wow, that is great news that she is able to deal with it well. It’s amazing…our Elise has a very similar situation. Her left vocal chord was/is paralysed. She had several endoscopies during her first 18 months to follow the progress and to MRI/tests to figure out what caused it. Intubation was ruled out very early, even though she had been re-intubated about four times in the first few months. The last theory was that the nerve was touched when she had an operation at 12 days old to close the arterial canal above her heart (not sure what it’s called in English?). Her vocal chord problems only showed up when she also blocked during feeds and had to have a lot of stimulation to get her breathing again. At that time the doctors didn’t know if she would have a voice, but she does…a quieter voice than her sister, but a beautiful voice. May she and Grey share a similar testimony of singing one day, as several people who were praying for Elise said she would (she already sings much of the time!). Grey is doing soo well!

  5. She is truly an Angel! GOOD BLESS you all. Our prayers are with you, keep the faith.

    We have an Autistic boy, now 26, he is my Angel.

    Elaine Wray
    IV Portfolio Manager
    Baxter

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