Day 119: High FIVES & Final Countdown

Grey has been doing so great the past few weeks. She currently weighs 5lbs 5 ounces! We were giving her high fives all week! We continue to be blown away at the miracle that she is.  We are so thankful for her life and everyday we are reminded of how precious it is.

After her swallow study, the speech therapist worked long and hard to figure out what suited her best as far as formula vs breast milk.   We all agreed that formula was the best option for Grey.  She drinks her whole bottle, every single time, and her reflux has greatly improved.  This was yet another thing I had to mourn.  I so badly wanted to be a mom that was able to breast feed.  I pumped long and hard for four months, but ultimately, it’s not about me.  It’s about Grey and what she needs.  I’m reminded again of the definition of motherhood – providing exactly what she needs.

Grey taking all of her bottles means the final countdown is ON.  She has to go five consecutive days with no episodes (dropping her heart rate and/or O2 saturations below 80%).  If she does have an episode that requires the nurses to stimulate or intervene in any way during the five day stretch she has to start over.  Potentially, we could have Grey home in the next week or two depending on if she has an epsiode.  This is so exciting for us!  We are trying to be patient because we don’t want her home before she is ready, but we want her home as soon as possible!

We can’t wait to be home enjoying some football and taking naps on the couch with our little Grey!  We will keep you posted as much as possible during this EXCITING week!! Hopefully our next post will be…HOME!

oh and p.s. TOMORROW she is FOUR months old! Happy 4 months, baby Grey!

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16 thoughts on “Day 119: High FIVES & Final Countdown

  1. So happy for you guys! It has been a long journey and God has answered many prayers! Enjoy your new family and prayers will continue.

  2. This is so awesome to hear! I know I speak for the neighborhood when I say we can’t wait to have the little one at home with her mom and dad where she belongs!! As always Larry and I are still keeping Grey in our thoughts and prayers.

  3. Congratulations… What a great time for your family!! My wife and I just had a 25 weeker 10 days ago at 1 lbs. 1 oz. so we take a lot of comfort in seeing success stories like that of Grey. At this point, the light at the end of the tunnel feels a long way away, but it’s great to have a reminder that it’s out there. Best wishes and good luck.

  4. You don’t know me, but I’ve been following your blog through a friend. I too had a preemie, born 6 weeks early, weighing 3lbs. My daughter couldn’t breast feed and I never produced enough milk even though I pumped like crazy. Letting go and mourning the idea that I would never breast feed was so hard. My daughter is now 10 months and growing like a weed. She thrived (and continues to) on formula. Being a NICU mom is so hard. Please know it’s totally
    Normal to be sad over not being able to breast feed. There are lots of moms in your place! I’m so happy to see Grey doing well and I continue to think of your family and will celebrate with you when you get to bring Grey home!

  5. Yayayay!!! This makes my heart smile! Lots of prayers for Grey are coming your way, as always! She is so precious! Love you!

  6. Thank God! She is a Precious Miracle! God Has His Reasons For Everything, Even tough Sometimes We Question Them. Love You, Lady!

  7. What a blessing baby Grey is. She has touched the hearts of many people. May God bless her with doing well and finally getting to go home. I praise God for His strength and grace for the two of you, as well. I can’t imagine what your days and nights have been like, so hang in there in a little longer.

  8. I had a 27 weeker who struggled with feedings and reflux. Those last 5 days seem to be the hardest!!! I’ve been following your story and have to say you are a champ! And- you made it breastfeeding 4 months! That’s something to be celebrated (I know how hard the pumping is!!!!!) keep your head up, the end is near and soon, it’s hard to believe but your NICU days will be distant memories. Prayers to you all during the final five!!! Or seven as my son would do!

  9. Just can’t stop grinning !! Wanna’ sing and praise. Thank you SO much for sharing the blessings of your family journey…… In the family of God, we rejoice with you, cry with you, pray with you and PRAISE with you. ❤️

  10. What amazing news! Again! Go Grey! We love you guys so much and are rooting for your sweet one. She will be home on the perfect day, just as God planned. ❤️

  11. I love LOVE seeing her without all of those tubes!!! She is absolutely precious and beautiful! Such a gift! Can’t wait to come visit you at HOME very soon!!!! Love and so many prayers!!!

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