Day 33: Quiet Days and Pleasant Surprises

The past several days have been fairly quiet and Grey’s progress remained at the status quo for most of the week.  Her greatest challange has continued to be her ability to tolerate feeding and intake the amout of calories she needs to grow.  Her tiny stomach has limited amount of bacteria to help breakdown food and her little kidneys can only tolerate so much protein.  Also, her torso is so small making space a vital commodity.  When space is taken up by the food in her stomach her lungs struggle to find the room to expand properly for breaths.  Furthermore, some of the oxygen from her vent can get trapped in her stomach as well, taking up even more space.  There is a delicate balance between providing the necessary calories she needs to grow while maintaining proper electrolyte balances and allowing room for her to breathe.  The doctors have decided to supplement her stomach feeds with TPN (nutrition through an IV).  This is to help provide her with some calories while reducing demand on her stomach.  Grey is now up to a whopping 630 grams (1 lbs 6 oz).  She is still tiny but has gained 40% of her birth weight!

This morning we arrived to yet another pleasant surprise – she is completely off her ventilator!  She is now on high flow oxygen and, for the time being, handling it well.  This is a nasal cannula that provides a continuous flow of oxygen.  This requires her to take breaths completely on her own, as opposed to the NIV NAVA vent that she was previously on which assisted her breathing through puffs of air pressure through her nasal cannula.  The doctors and nurses are impressed that she can handle this already and hoping this might help with her distended stomach (gas buildup caused by the vent).

Praise The Lord for His continued hand of protection and healing power!  He continues to show His Awesomeness!  Thank you all for the many prayers.  Please keep them coming!

 

Grey off the vent!
Grey off the vent!
High flow oxygen! BIG GIRL STATUS!
High flow oxygen! BIG GIRL STATUS!
Dad holding Grey!
Dad holding Grey!

 

 

 

 

 

 

7 thoughts on “Day 33: Quiet Days and Pleasant Surprises

  1. As the grandma of a now 3 year old who was born at 26 1/2 weeks at 1 lb 7 oz, I have been praying for and following Grey’s journey closely. It brings back a lot of what Grey and u are experiencing……….the roller coaster ride, celebration of even poops, etc. Our granddaughter had a 3 to 4 brain bleed and prognosis was not good. Praise to the Great Physician and amazing medical staff, our granddaughter is doing amazing. At her 3 year check at Children’s Hosp (where she spent her first 4 months), the doctor said she was a very sick baby and is where she is at today because of God’s miracle. That is my prayer for Grey.

  2. I hold my breath each day until updates come in. Praise God! Grey is a warrier princess! She is in my prayers daily!

  3. Our family and I have been praying for baby Grey! Braelyn and I were trying to discuss her size so we went to her bedroom for a doll. We think she is close to the same size as the Target circo dolls that are like $2.99. It would be neat to see one up next to her. Her very first “life size” doll. Continued Prayers!

  4. Love all the amazing news about Big Girl Grey! Continuing to pray for her everyday and sending lots of love to all of you!

  5. That’s awesome news!! Big girl Grey is getting stronger & stronger. We’re are praying for her multiple times a day here, as I know people all over the world are!

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